P
Python
Member
NOTE: I usually post on HairlossTalk Forum
We all know that our current situation is anything but desirable, in fact, it is outright disgusting. The only effective treatments we have today have been out for more than 20 years. We need innovation, we need things to change, the snail pace of hair loss research has to stop. But we are also guilty of not pushing the companies, giving our voice in the form that matters most, money in form of investment for the speeding of promising solutions, or funding research that appears very promising, such as hair cloning.
There has been a lot of talk before about crowdfunding, and it all lead to a bunch of good ideas, but also a lot of negativity among some influential members(you know who you are). We are not ready for a full blown crowdfunding, but we are definitively ready to start a foundation. So that one day when the time is right for a crowdfunding, our foundation will be set, with credibility, funding, and the support of millions of people suffering from this horrible disease known as MPB.
Our vision for the foundation is to have two boards, one of which will be composed of well known, knowledgeable and respected members from the forums, that will handle the details of the spending and the direction this foundation will go. The other will be an advisory board(yet to be determined), that will consist of top scholars and researchers in the field without any bias towards the funding, just the cause. Some of you are skeptical that something like this will work, and I understand completely where this is coming from, hair loss in general is usually not taken seriously. But I want you to take a step back, and reflect on how other diseases have their community, and how they also founded a foundation, and how much they have accomplished. Diseases that some of us have not even heard of, surely something that affects so many people such as Androgenic Alopecia has both the numbers and the commitment.
There has also been some skepticism based on the fact that we still don't have a solid idea of where the funding will go and the roadblocks like regulations from the FDA or other medical regulations institution. The answer to that right now is, I don't know either, but these sort of problems will be tackled one by one with in time, and we can host skype meetings and exchange ideas on the best possible way to approach these problems. We are a community of millions, we have lawyers, marketers, programmers, designers, business men and most importantly we have passionate, committed people that want to make a difference. Hair loss sufferers who come here religiously, just like me, hoping that one day they will see the thread that says "MPB has been cured". Do you really think we're not going to figure this out? Of course we will, there will be bumps around the road, hell... we may fail the first time, we may fail the second, but eventually with enough perseverance, we will get there. An idea like this has been going around, but usually it is just that, an idea that never takes form or initiative. I say we do this now, forget about our past failures, forget about our egos and differences, we need to stand together as a community. Because we are part of this community, whether we like it or not, you have been dealt the crappy hand, and so have I, but let's make an attempt to change this. Don't let this opportunity pass once more, don't let the opportunity of making a real influence in hair loss research pass you by. We need to start somewhere, and I believe we are more ready to do it now, and absolutely fed up with the status quo. Foundations have to start somewhere, in forums and in chatrooms, let's start this one today!!!
So the current website is to get the ball rolling, we are currently located at http://mpbfoundation.org/. I am well aware that the site is not perfect, and in fact I am running into a few technical problems, but like I said again, this is just the beginning. There will be plans to create a much more professional and aesthetically pleasing site later, and then 301 redirect all our content. What we're looking for now is to get the awareness of the foundation out on other forums, websites, basically anywhere you think it will help. You are free to use the current thread as a boilerplate or choose to write your own thread. Currently we have gotten more members on-board, but we are not done, we need your support. We are recruiting for potential contributors in the technical sector to make this a successful venture.
What we need is more of the following:
Technical writers: We need well spoken people, with knowledge of SEO and Internet marketing in general to write the content for the website and future blog posts. We are looking for professionals with a decent understanding of the hair loss process who we can trust.
Programmers: In the future we do plan on having a much more professional site which will be custom build, in order to fun faster and do the things we want it to do. We will most likely write it on the LAMP stack using PHP and maybe Wordpress as the CMS but that is yet undecided.
Graphic Designers/Motion Artists: It can be overwhelming to have so much text to convey our message, when the real solution is a graphic that can say the story in an interesting and aesthetic way.
Marketers: If you know how to get the word out, or raise money for the foundation, let us know.
For the rest of you who still want to help, you can still do that by spreading out the word on other forums, websites, join our mailing list, et cetera. Connect with us on social media sites, like us on Facebook, follow us on twitter, youtube and G+. I have been having some problems on the social media icons, so I will add them here.
Facebook, Twitter, Youtube, Google Plus+ .
If you have any questions you can go to the site and contact page and you will see the email, since I don't want to put it here for spam bots. Let's do this now, now is the time!!! Thank you for your time.
We all know that our current situation is anything but desirable, in fact, it is outright disgusting. The only effective treatments we have today have been out for more than 20 years. We need innovation, we need things to change, the snail pace of hair loss research has to stop. But we are also guilty of not pushing the companies, giving our voice in the form that matters most, money in form of investment for the speeding of promising solutions, or funding research that appears very promising, such as hair cloning.
There has been a lot of talk before about crowdfunding, and it all lead to a bunch of good ideas, but also a lot of negativity among some influential members(you know who you are). We are not ready for a full blown crowdfunding, but we are definitively ready to start a foundation. So that one day when the time is right for a crowdfunding, our foundation will be set, with credibility, funding, and the support of millions of people suffering from this horrible disease known as MPB.
Our vision for the foundation is to have two boards, one of which will be composed of well known, knowledgeable and respected members from the forums, that will handle the details of the spending and the direction this foundation will go. The other will be an advisory board(yet to be determined), that will consist of top scholars and researchers in the field without any bias towards the funding, just the cause. Some of you are skeptical that something like this will work, and I understand completely where this is coming from, hair loss in general is usually not taken seriously. But I want you to take a step back, and reflect on how other diseases have their community, and how they also founded a foundation, and how much they have accomplished. Diseases that some of us have not even heard of, surely something that affects so many people such as Androgenic Alopecia has both the numbers and the commitment.
There has also been some skepticism based on the fact that we still don't have a solid idea of where the funding will go and the roadblocks like regulations from the FDA or other medical regulations institution. The answer to that right now is, I don't know either, but these sort of problems will be tackled one by one with in time, and we can host skype meetings and exchange ideas on the best possible way to approach these problems. We are a community of millions, we have lawyers, marketers, programmers, designers, business men and most importantly we have passionate, committed people that want to make a difference. Hair loss sufferers who come here religiously, just like me, hoping that one day they will see the thread that says "MPB has been cured". Do you really think we're not going to figure this out? Of course we will, there will be bumps around the road, hell... we may fail the first time, we may fail the second, but eventually with enough perseverance, we will get there. An idea like this has been going around, but usually it is just that, an idea that never takes form or initiative. I say we do this now, forget about our past failures, forget about our egos and differences, we need to stand together as a community. Because we are part of this community, whether we like it or not, you have been dealt the crappy hand, and so have I, but let's make an attempt to change this. Don't let this opportunity pass once more, don't let the opportunity of making a real influence in hair loss research pass you by. We need to start somewhere, and I believe we are more ready to do it now, and absolutely fed up with the status quo. Foundations have to start somewhere, in forums and in chatrooms, let's start this one today!!!
So the current website is to get the ball rolling, we are currently located at http://mpbfoundation.org/. I am well aware that the site is not perfect, and in fact I am running into a few technical problems, but like I said again, this is just the beginning. There will be plans to create a much more professional and aesthetically pleasing site later, and then 301 redirect all our content. What we're looking for now is to get the awareness of the foundation out on other forums, websites, basically anywhere you think it will help. You are free to use the current thread as a boilerplate or choose to write your own thread. Currently we have gotten more members on-board, but we are not done, we need your support. We are recruiting for potential contributors in the technical sector to make this a successful venture.
What we need is more of the following:
Technical writers: We need well spoken people, with knowledge of SEO and Internet marketing in general to write the content for the website and future blog posts. We are looking for professionals with a decent understanding of the hair loss process who we can trust.
Programmers: In the future we do plan on having a much more professional site which will be custom build, in order to fun faster and do the things we want it to do. We will most likely write it on the LAMP stack using PHP and maybe Wordpress as the CMS but that is yet undecided.
Graphic Designers/Motion Artists: It can be overwhelming to have so much text to convey our message, when the real solution is a graphic that can say the story in an interesting and aesthetic way.
Marketers: If you know how to get the word out, or raise money for the foundation, let us know.
For the rest of you who still want to help, you can still do that by spreading out the word on other forums, websites, join our mailing list, et cetera. Connect with us on social media sites, like us on Facebook, follow us on twitter, youtube and G+. I have been having some problems on the social media icons, so I will add them here.
Facebook, Twitter, Youtube, Google Plus+ .
If you have any questions you can go to the site and contact page and you will see the email, since I don't want to put it here for spam bots. Let's do this now, now is the time!!! Thank you for your time.
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